Psychiatrists now call disabling grief after the death of someone you are close to “pathological”. This is after only two months after the death. In a book called “Death’s Summer Coat” Brandy Schillace comments,”The modern Westerner has lost loss; death as a communal event, and mourning as a communal practice, have been steadily killed off.” The success of specialised medicine and the development of institutionalised care mean that fewer of us look after the sick and dying at home. People are no longer able, organised or even prepared to accommodate a dying relative at home. Palliative care can mean that, once a doctor has decided he or she can do nothing more to help the patient, the latter is wheeled off to a separate part of the hospital and that is the last you see of them alive. It is care-less, businesslike, and rather brutal. It leaves normal, caring people in shock and often feeing guilty that it all ended so clinically, and that they had done so little to show love and care.
I believe that grieving continues in stop/start fashion for many years and is natural. My own parents died nearly twenty five years ago, and yet they are seldom out of my thoughts in one context or another. This is, I’m sure, human and totally normal. And like many other people I dearly wish I could have done something more to show my love and to make their last days more care-filled and dignified. Were I to be asked for life advice by a young person, one of the things I would say is, “Be careful that, when your parents face death, you do everything you can to show your care and love; if not, a feeling of guilt will never leave you. Death takes but a short time; the memory of it stays with you for life.”
To The Sunday Times
I am now 97 years of age, and until just a few months ago everything in the garden was fairly rosy. But now I find it difficult to walk and I cannot do simple, mundane tasks that I used to take for granted such as open jars or turn on taps. My memory is deteriorating fast – I just hope I can remember why I’m writing this letter and to whom I intend to send it! On top of all this I am in constant pain. So many people are kept alive in agony with no hope of recovery or relief, desperate for an end to their suffering, but prevented from choosing a dignified end by outdated laws. I didn’t ask anyone if I could come into this world and I don’t see why I have to have permission to leave it.
Charles Whitecross, by email
Caring for the dying has become unaffordable. Because life expectancy is so high now, people spend a greater proportion of lives unable to work or be useful, even if they are still alive. In the past, the vast majority of people would be dead before they got to that stage. Nowadays that is not so. Which is mostly good, except for that it puts a large burden on the younger generations. To solve this, we have institutionalised dying, with healthcare professionals doing what we would have been expected to do. I’m only nineteen so maybe this decision is premature, but that’s not the way I want to go. If I become too old to look after myself, I’d rather die than live what would be a life of misery. Hopefully by then I’ll have the freedom to decide for myself instead the current situation, where the government imposes its morality on everyone.